{"id":2402,"date":"2025-11-12T20:47:14","date_gmt":"2025-11-12T20:47:14","guid":{"rendered":"https:\/\/www.insiemecontrobatten.it\/?page_id=2402"},"modified":"2026-01-27T20:48:48","modified_gmt":"2026-01-27T20:48:48","slug":"trasparenza","status":"publish","type":"page","link":"https:\/\/www.insiemecontrobatten.it\/en\/trasparenza\/","title":{"rendered":"Transparency"},"content":{"rendered":"
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Transparency<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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We believe that trust is built through sharing.<\/b>\nFor this reason, we want everyone who chooses to support us to understand how their contribution is transformed into real, tangible hope <\/span>for Rachele.<\/b><\/p>

Every step of our journey is shared with those who walk alongside us, because together we can truly make a difference.\nThat is why we will regularly update this section to show how donations are turned into concrete actions in support of our mission.<\/span><\/p>

Every donation, every share, every word of encouragement helps bring hope to a child and her family.\u00a0<\/span><\/p>

La trasparenza non \u00e8 solo un dovere: \u00e8 il modo pi\u00f9 sincero per dirvi grazie.<\/b><\/p>

Al momento\u00a0non \u00e8 disponibile una stima definitiva per la terapia, poich\u00e9 \u00e8 ancora in fase clinica. Tuttavia, basandoci su precedenti per terapie geniche simili, ci aspettiamo che il costo possa collocarsi nell\u2019ordine di diverse centinaia di migliaia di dollari per singola somministrazione, pi\u00f9 le spese aggiuntive legate a viaggi, permanenza, supporto post-trattamento e logistica.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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How We Use the Funds<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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All donations are allocated to supporting daily life needs and the treatment project <\/b>in the United States, in particular for:<\/span><\/p>

  • Acquisto di ausili e presidi a supporto delle attivit\u00e0 quotidiane e scolastiche<\/span><\/li>
  • Terapia genica sperimentale\u00a0per la malattia di Batten<\/span><\/li>
  • establishing contact with the specialized medical center in the United States<\/span><\/li>
  • completing the necessary procedures for transfer and clinical evaluation<\/span><\/li>
  • Viaggi e permanenza\u00a0della bambina e della sua famiglia<\/span><\/li>
  • medical and logistical support<\/span><\/li>
  • Attivit\u00e0 di sensibilizzazione e raccolta fondi\u00a0in Italia<\/span><\/li><\/ul>

    (Le spese di gestione dell\u2019associazione sono ridotte al minimo e sostenute da volontari e partner solidali.<\/span><\/i>)<\/span><\/i><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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    Project Update<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    Our journey toward gene therapy for Rachele continues with determination and hope.<\/span>
    <\/span>At present, we are awaiting the final definition of the last operational details related to the treatment:<\/span><\/p>

    • La\u00a0spesa complessiva per la terapia genica\u00a0sar\u00e0 conosciuta in maniera pressoch\u00e9 certa\u00a0all\u2019inizio del 2026.<\/span><\/li>
    • Nello stesso periodo verr\u00e0 comunicata la\u00a0struttura ospedaliera statunitense\u00a0che ospiter\u00e0 la bambina e che eseguir\u00e0 la terapia.<\/span><\/li>
    • L\u2019intervento per la\u00a0somministrazione della terapia genica \u00e8 previsto per la primavera 2026.<\/span><\/li><\/ul>

      In the meantime, fundraising continues with enthusiasm and gratitude. Below, you can see how close we are to reaching our goal.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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      \n\t\t\t\tIl viaggio della speranza<\/span>\n\t\t\t\t\t\t\t\t\t65%<\/span>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      Ogni contributo ci avvicina al momento in cui la speranza potr\u00e0 trasformarsi in realt\u00e0.<\/b><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      Support Us<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      You can support us with a donation via bank transfer:<\/p>\n

      Account holder: <\/span>HOPE4U INSIEME CONTRO BATTEN APS<\/span><\/p>

      C.F.: 92022830548<\/strong><\/span><\/span><\/p>\n

      IBAN: IT10V0344038480000000266600<\/span><\/p>\n

      Bank: Banco Desio<\/span><\/p>\n

      Donation purpose: Donazione<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"cropped\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

      Trasparenza Crediamo che la fiducia nasca dalla condivisione. Per questo vogliamo che chi sceglie di sostenerci sappia come il proprio contributo viene trasformato in speranza concreta per Rachele. Ogni passo del nostro cammino \u00e8 condiviso con chi ci accompagna, perch\u00e9\u00a0insieme possiamo davvero fare la differenza. Per questo aggiorneremo regolarmente questa sezione per mostrare come le […]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-2402","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/pages\/2402","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/comments?post=2402"}],"version-history":[{"count":16,"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/pages\/2402\/revisions"}],"predecessor-version":[{"id":2440,"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/pages\/2402\/revisions\/2440"}],"wp:attachment":[{"href":"https:\/\/www.insiemecontrobatten.it\/en\/wp-json\/wp\/v2\/media?parent=2402"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}