Insieme contro Batten
Hope4U
United by hope,
united for life, led by love.
The Association
A Journey of Hope
What is Batten disease?
Our Goal
To borrow words from my mom, diseases like Batten are rare…but hope should not be.
— Taylor’s Tale, World Rare Disease Day
Her story
Rachele is 8 years old today.
She is a sweet, determined, and empathetic child with a love for cooking. She enjoys caring for animals and has a natural calling to look after the elderly, to whom she shows great attention and affection. Often strong-willed and very determined — and it is precisely here that her strength lies. About a year ago, she began to see the world as blurred… and then less and less. Today, her vision is almost completely gone, but not her desire to live fully — a drive that pushes her to keep going, to adapt, and to face adversity without giving up.
Join us. Give hope. Fight Batten. Together 💙
If you are reading these words, you can be part of this hope.
You can support us with a donation via bank transfer:
Account holder: HOPE4U INSIEME CONTRO BATTEN APS
C.F.: 92022830548
IBAN: IT10V0344038480000000266600
Bank: Banco Desio
Donation purpose: Donazione
